Danish registries

Overview of Danish Registry Reviews

With the Overview of Danish Registry Reviews, the Danish Society for Pharmacoepidemiology aims to provide a list of reviews that most accurately describes the main Danish registries and their use for pharmacoepidemiological research.

In 2019, Morten Schmidt and colleagues published a review of the Danish Health Care System and the associated medical databases. This review is a good place to get an overview of the Danish registries and reviews published on these registries. You can find the review here https://doi.org/10.2147/Clep.S179083.

However, reviews may become outdated with time for several reasons. Thus, the registries or the methods for which they can be used in research are often improved over time. The application procedures may also change. Finally, validation of the registry data with new information about the quality of the data may also justify updates of existing reviews.

There is therefore a consistent need to stay updated on which reviews that best describe each registry. To facilitate this information to individual researcher and to create a common platform where researchers easily can check if new reviews have been published, the Society have made the overview below.

Comments or suggestions for updates are welcome and can be mailed to info@dsfe.dk.

Overview of the Danish registries

The Danish name of register

The English name of registerThe title of the publicationAuthorsYear of publicationJournalDOI with link
IVF-registeret (assisteret reproduktion)The Danish National Register of assisted reproductive technologyThe Danish National Register of assisted reproductive technology: content and research potentialsJølving LR, Erb K, Nørgård BM, Fedder J, Larsen Md2021Eur J Epidemiol. 2021; 36(4):445-45210.1007/s10654-021-00742-8
Det Elektroniske Patient Medicineringssystem (EPM) [Hospitalslægemiddelregister for Region Hovedstaden]The Electronic Patient Medication module (EPM) [In-hospital drug-use in the Capital Region of Denmark]Content and validation of the Electronic Patient Medication module (EPM)-the administrative in-hospital drug use database in the Capital Region of DenmarkJensen TB, Jimenez-Solem E, Cortes R, et al2018Scand J Public Health 201810.1177/1403494818760050
Det Medicinske FødselsregisterMedical Birth RegistryThe Danish Medical Birth RegisterBliddal M, Broe A, Pottegård A, et al2018Eur J Epidemiol 2018;33: 27-3610.1007/s10654-018-0356-1
Odense Pharmacoepidemiolocial Database (OPED)Odense Pharmacoepidemiolocial Database (OPED)Odense Pharmacoepidemiological Database: A Review of Use and ContentHallas J, Hellfritzsch M, Rix M, et al2017Basic Clin Pharmacol Toxicol. 2017 May;120(5):419-425.10.1111/bcpt.12764
LægemiddelstatistikregisteretThe Danish National Prescription RegistryData Resource Profile: The Danish National Prescription RegistryPottegård A, Schmidt SA, Wallach-Kildemoes H, et al2016Int J Epidemiol. 2016 Oct 27. pii: dyw213.10.1093/ije/dyw213
Medstat.dkMedstat.dk – The Danish online Drug use statisticsData Resource Profile: Danish online drug use statistics (MEDSTAT)Schmidt M, Hallas J, Laursen M, Friis2016Int J Epidemiol. 2016 Oct;45(5):1401-1402g10.1093/ije/dyw116
LandspatientregistretThe Danish National Patient RegistryThe Danish National Patient Registry: a review of content, data quality, and research potentialSchmidt M, Schmidt SAJ, Sandegaard JL, et al2015Clin Epidemiol 2015;7:449-9010.2147/CLEP.S91125
Vestdansk hjerte-CT databaseWestern Denmark Cardiac Computed Tomography RegistryThe Western Denmark Cardiac Computed Tomography Registry: a review and validation studyNielsen LH, Nørgaard BL, Tilsted HH, et al2015Clin Epidemiol 2015;7:53-6410.2147/CLEP.S73728
CPR-registretThe Civil Registration SystemThe Danish Civil Registration System as a tool in epidemiologySchmidt M, Pedersen L, Sørensen HT2014Eur J Epidemiol 2014;29:541-910.1007/s10654-014-9930-3
Dansk receptdatabaseThe Danish National Database of Reimbursed PrescriptionsExisting data sources for clinical epidemiology: The Danish National Database of Reimbursed PrescriptionsJohannesdottir SA, Horvath-Puho E, Ehrenstein V, et al2012Clin Epidemiol 2012;4:303-1310.2147/CLEP.S37587
Bygnings- og Boligregistret (BBR)The Building and Housing RegisterThe Building and Housing RegisterChristensen G2011Scand J Public Health 2011;39:106-810.1177/1403494811399168
CancerregistretThe Danish Cancer RegistryThe Danish Cancer RegistryGjerstorff ML2011Scand J Public Health 2011;39:42-510.1177/1403494810393562
Det Centrale psykiatriregisterThe Danish Psychiatric Central Research RegisterThe Danish Psychiatric Central Research RegisterMors O, Perto GP, Mortensen PB2011Scand J Public Health 2011;39:54-710.1177/1403494810395825
DødsårsagsregistretThe Danish Register of Causes of DeathThe Danish Register of Causes of DeathHelweg-Larsen K2011Scand J Public Health 2011;39:26-910.1177/1403494811399958
IndkomstregistretIncome Statistics RegisterDanish registers on personal income and transfer paymentsBaadsgaard M, Quitzau J2011Scand J Public Health 2011;39:103-510.1177/1403494811405098
Laboratoriedatabasen (LABKA)The clinical laboratory information system (LABKA)Existing data sources for clinical epidemiology: The clinical laboratory information system (LABKA) research database at Aarhus University, DenmarkGrann AF, Erichsen R, Nielsen AG, et al2011Clin Epidemiol 2011;3:133-810.2147/CLEP.S17901
UddannelsesregistreDanish Education RegistersDanish education registersJensen VM, Rasmussen AW2011Scand J Public Health 2011;39:91-410.1177/1403494810394715
Vestdansk HjertedatabaseThe Western Denmark Heart RegistryExisting data sources for clinical epidemiology: The Western Denmark Heart RegistrySchmidt M, Maeng M, Jakobsen C-J, et al2010Clin Epidemiol 2010;2:137-4410.2147/CLEP.S10190
Aarhus Universitets ReceptdatabaseAarhus University Prescription DatabaseExisting data sources for clinical epidemiology: Aarhus University Prescription DatabaseEhrenstein V, Antonsen S, Pedersen L2010Clin Epidemiol 2010;2:273-910.2147/CLEP.S13458

Overview of the timeline for the initiation of the Danish registries (Clin Epidemiol 2015;7:449–90)