Position papers
Resources
Responsible dissemination of research
Danish Society for Pharmacoepidemiology has formulated a number of suggestions for the responsible dissemination of research results in news media.
When new studies are published, media interest can be significant, as health and drugs affect a large part of the population. Sharp angles and exaggeration of scarce research results can cause citizens to become unnecessarily worried and significantly burden the healthcare system. As such, skewed press coverage of specific studies can ultimately cause patients to either opt out of effective treatments or opt for less relevant treatment or even hurtful alternatives. It is therefore important for public health that the debate on new research results takes place in a responsible manner.
Based on recent years’ debate on research dissemination, the Danish Society for Pharmacoepidemiology has drawn up a number of calls for researchers and institutions. The recommendations have been created on the basis of a debate day, which was held in collaboration with the Danish Medicines Agency in the autumn of 2018, with the participation of a large number of actors in the field.
Danish Registry Reviews
The position paper is a comprehensive, and ongoing, list of studies describing the Danish registers. The paper is a copy of the the online list, which can be found on our website here.
Collaboration between public sector researchers and the pharmaceutical industry in pharmacoepidemiological research
In this joint paper, DSFE and Lif wishes to describe the two associations’ approach to the use of health data from Danish registries and set out the principles for collaboration between public sector researchers and the pharmaceutical industry for pharmacoepidemiological studies.
Academia and Industry collaboration (in English)
Academia and Industry collaboration (in Danish)
Validation is research
The position paper was written after we received several complaints from researchers, who have had difficulties getting permission to conduct this type of studies.
In DSFE we believe, that validation studies help to obtain new knowledge, and are a key elements of research in prevention, diagnosis, treatment, and prognosis of Danish patients. Validation studies are therefore covered by the concept of research and to argument against this contravene broad international consensus.